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Our Story
Our Story
In 1989, my sister Christine and I were both diagnosed with Cystic Fibrosis (CF). My sister was diagnosed with a severe case. I remember her frequently going in and out of the hospital and always visiting doctors. When she was home, she needed breathing treatments, and my parents would have to pound on her back to help loosen the mucus in her lungs. She was on enzymes to help break down food., but unfortunately due to complications with the enzymes, she had to have a portion of her colon removed.This resulted in her needing a colostomy bag to collect urine and stool.
She also needed a lung transplant, but unfortunately, she didn’t get one. In May 1993, my sister lost her battle with CF. She was only 15 ½ years old, which was around the average age of life expectancy for children with the disease at that time.
September 5, 1977-May 24, 1993