Our Story

Our Story

In 1989, my sister Christine and I were both diagnosed with Cystic Fibrosis (CF). My sister was diagnosed with a severe case. I remember her frequently going in and out of the hospital and always visiting doctors. When she was home, she needed breathing treatments, and my parents would have to pound on her back to help loosen the mucus in her lungs. My sister also suffered from colon cancer issues. She was on enzymes to help break down food., but unfortunately due to complications with the enzymes, she had to have a portion of her colon removed.This resulted in her needing a colostomy bag to collect urine and stool.

She also needed a lung transplant, but unfortunately, she didn’t get one. In May 1993, my sister lost her battle with CF. She was only 15 ½ years old, which was around the average age of life expectancy for children with the disease at that time.

I also have CF, but I have a mild case that primarily affects my fertility issues. When I was young, I was also put on enzymes to help break down food. I visited the CF clinic regularly for lung tests and to meet with the dietitian. Thankfully, my lungs were always clear during these check-ups because the mucus didn’t fill my lungs. Unfortunately, my pancreas doesn’t produce enough enzymes to break down my food because mucus obstructs the ducts.

When I turned 17, the doctor took me off the enzymes because he thought I didn’t need them anymore. Then, in December 2024, I started suffering from significant abdominal issues. After months of problems, going in and out of the hospital, and seeing doctors, they put me back on enzymes to help manage my digestion.

To this day, I still struggle with stomach issues like constipation, upset stomach after eating, and weight loss. I require ongoing treatment from specialist doctors for my CF. I am fortunate that my lungs remain clear and don’t need treatment.

Additionally, CF causes fertility issues for me due to thick mucus blocking the vas deferens. There are a few options available to use to have a family: one was to have sperm retrieved, washed, and then injected into my wife; the second was IVF; the third was adoption or fostering. We decided to pursue IVF. If we were to conceive naturally, our child would have a high risk of having CF.

I am creating this website and selling apparel on it. All proceeds from the apparel will go to the CF Foundation. They will use the funds to raise awareness about CF, help people understand it, work towards preventing it, and ultimately funding a cure/eliminating it.

Thank you so much for considering a purchase from this website. Your generosity is greatly appreciated.

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